I’m gonna delete these in a few days so sorry for the massive text posts followers:
Update yesterday actually turned out to be okay. My body eventually took to the Percocet and my pain eased as long as I took 2 every 4 hours. My brother and his gf came to visit and it was very sweet. I took a muscle relaxer at 6pm with my pain meds and passed the fuck out until 10pm. Took my pain meds again and passed out until now, 3:30am. My nurse took my vitals and my BP is too low so I have to wear this contraption on my legs that inflates slowly and then deflates to push more blood to my heart. It feels cool but I probably won’t fall asleep with these babies on. I also haven’t pooped in 2 days and I’m starting to feel it. Despite taking 2 stool softeners and 2 laxative doses, my stomach is messed up from all the meds. Mega constipated. Hopefully I poo later this morning so it doesn’t turn into a more painful ordeal. I’m eating normally which is cool. If I poo in the morning I might get discharged tomorrow!!! Which I’m excited and scared for. I feel so safe and comfortable here. My every need is taken care of and I don’t have to hide my pain or emotion or anything. At home it’s definitely a different dynamic… Despite all of the pain and the fact that this is a hospital and I just had brain surgery it’s been a really great stay? And I can’t believe I’m saying that?? It’s been an adventure. Hopefully a once in a lifetime experience.
I’m writing this here for my own accord- sorry if it bothers anyone. I’ll probably delete it in a few days anyways:
I did not sleep last night. I spend 2 hours with horrible diarrhea cramps of the toilet only to realize that it wasn’t diarrhea but my IBS freaking out because I was really stressed. So I spent a few hours in bed cradling my stomach and trying to calm down but my heart palpitations wouldn’t stop. I literally had a panic attack in bed for hours. These continued to around 4am when I caught several short bits of sleep. It’s now 5 and I feel really really shitty and feverish but I’m awake so I’m going to head to my surgery anyways. If I get there and I have a fever I can’t have surgery. So here is to a really bad night and hopefully a better day.
Update! I had a low grade fever and they did surgery anyway!! It was 99.3 so it was not high enough for concern. They gave me antibiotics anyways for the surgery, so if it will kill my viral infection if I have one. My anesthesiologist was super super knowledgable about POTS and made sure one of his residents saw me because of my “interesting history”. Overall I’m in a lot of discomfort but I feel so safe here. Everyone is great. Top care.